Now is the time to increase
cleft and craniofacial awareness
in your community.
This July, treatment specialists, support organizations, advocacy groups, and affected individuals and families are joining forces to encourage awareness of cleft and craniofacial conditions for National Cleft & Craniofacial Awareness & Prevention Month (NCCAPM). The American Cleft Palate-Craniofacial Association (ACPA) and the Cleft Palate Foundation (CPF) will work together to promote awareness throughout July and we need your help to spread the word.
We encourage you to build cleft/craniofacial awareness in your own unique way. Purple is the official color of NCCAPM– let’s see how you can work it in! Consider approaching your cleft palate/craniofacial team about how you can help. They may know of local family support needs or activities, other awareness campaigns, or political advocacy efforts that would benefit from your volunteer time. Here are some other ways you can join us in promoting awareness this July:
- Social Media:
- CPF would like to share your pictures and stories with the social media world. If you’d like to get involved, please send your picture and brief caption or context to firstname.lastname@example.org. For more information, visit the CPF Facebook page.
- Post your story and pictures on social media and use #cleftawareness. Follow CPF (Facebook, Twitter) and ACPA (Facebook, Twitter) and share our posts with your friends.
- Distribute Cleftline brochures to your local hospitals and pediatric offices so they can refer new families to the Cleft Palate Foundation for information and specialist referrals. Email email@example.com to get a free supply.
- Provide publications such as our Letter to a Teacher to your local schools or school board. Encourage local school classes to read Wonder or other children’s books about facial difference. Explore school programs like Facing Differences and ask your school district to implement one of these programs.
- Request official acknowledgement of the awareness month from your local government and contact local media to share the news. Here’s a sample proclamation from the mayor in Chapel Hill, North Carolina declaring July as Cleft & Craniofacial Awareness & Prevention Month in the Town of Chapel Hill.
- Ask your local newspaper to write an article highlighting someone with a facial difference. We’re happy to be a resource for any media referrals.
- Write to your state and federal representatives to advocate for cleft palate/craniofacial patients and insurance legislation to cover treatment costs. We can provide information packets to heighten their awareness of facial birth defects and insurance concerns.
- Talk about cleft or craniofacial treatment, prevention, advocacy, or even your own related experiences in everyday conversation. Use casual opportunities with your friends and family to improve awareness about cleft and craniofacial conditions. A little education goes a long way towards understanding.
- Find out if you have a local support group, and get involved. You might even consider starting one yourself. Many support groups have moved online, so look for conversations or groups where you can contribute a positive and informed perspective.
- Make a donation or hold a local fundraising activity to benefit CPF. In the past we’ve received generous contributions from golf tournaments, dance contests, bake sales, birthday parties, lemonade stands… and the list goes on. We can help make your idea for a fundraiser happen. Email firstname.lastname@example.org for fundraising assistance.
Visit the National Cleft & Craniofacial Awareness & Prevention Month (NCCAPM) website to learn about member organizations and download graphics for your own use.
Stay tuned to our social media outlets for updates from ACPA and CPF and to hear what others are doing nationwide. Please tell us about your activities too so we can feature you online. We can’t wait to hear how you’re building awareness this month!