ACPA Family Services

Cleft & Craniofacial Awareness Month

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Awareness graphic
Now is the time to increase

cleft and craniofacial awareness

in your community.

 

This July, treatment specialists, support organizations, advocacy groups, and affected individuals and families are joining forces to encourage awareness of cleft and craniofacial conditions for National Cleft & Craniofacial Awareness & Prevention Month (NCCAPM).  The American Cleft Palate-Craniofacial Association (ACPA) is promoting awareness throughout July and we need your help to spread the word.

We encourage you to build cleft/craniofacial awareness in your own unique way.  Purple is the official color of NCCAPM– let’s see how you can work it in!  Consider approaching your cleft palate/craniofacial team about how you can help.  They may know of local family support needs or activities, other awareness campaigns, or political advocacy efforts that would benefit from your volunteer time.  Here are some other ways you can join us in promoting awareness this July:

  • Online:
    • Add the “Cleft Awareness” Facebook Frame or Twibbon to your profile picture for the month of July.
    • ACPA Family Services would like to share your pictures and stories on social media. To participate, please send your picture and brief caption or context to intern@cleftline.org. For more information, visit the ACPA Family Services Facebook page.
    • Your story is unique and powerful. Submit your story to ACPA Family Services for us to share in our national awareness campaigns.
    • Post your story and pictures on social media and use #cleftawareness.  Follow ACPA Family Services (Facebook, Twitter) and ACPA (Facebook, Twitter) and share our posts with your friends.
    • Email us at info@cleftline.org with what you’re doing for Awareness Month and we’ll share it with others on social media.
  • Community:
    • Request official acknowledgement of the awareness month from your local government and contact local media to share the news.  Here’s a sample proclamation from the mayor declaring July as Cleft & Craniofacial Awareness Month in the Town of Chapel Hill, North Carolina.
    • Ask your local newspaper to write an article highlighting someone with a facial difference. Please use us a resource for any media referrals.
    • Write to your state and federal representatives to advocate for cleft palate/craniofacial patients and insurance legislation to cover treatment costs. We can provide information packets to heighten their awareness of medically-necessary cleft and craniofacial care.
    • Talk about your cleft or craniofacial journey and experiences in everyday conversation.  Use casual opportunities with your friends and family to share information and build awareness.  A little education goes a long way towards understanding.
    • Find out if you have a local support group, and get involved.  You might even consider starting one yourself. Many support groups have moved online, so look for conversations or groups where you can contribute a positive and informed perspective.
  • Donations:
    • Make a donation or hold a local fundraising activity to benefit CPF.  In the past we’ve received generous contributions from golf tournaments, dance contests, bake sales, birthday parties, social receptions… and the list goes on. We can help make your idea for a fundraiser happen.  Email info@cleftline.org for fundraising assistance.
    • We all love a dress-down day at work! Work with your employer to allow your colleagues to donate $10.00 to ACPA to wear jeans on any day they choose during the month of July.
    • Plan a bag lunch day in the office, and ask your co-workers to contribute $15.00 to ACPA instead of ordering out.  Raise cleft awareness and get some great quality time with your co-workers too.
    • Use an empty coffee can or mason jar to collect spare change at your local school, dentist office, or reception desk to donate to ACPA.  Change adds up quickly, and imagine how much you can gather in July!
  • Materials:
    • Do you know someone new to the cleft community?  Share a link to our family educational materials with them. All of our publications are available for free download.
    • Provide publications such as our Letter to a Teacher to your local schools or school board. Encourage local school classes to read Wonder or other children’s books about facial difference.  Explore school programs like Facing Differences and ask your school district to implement one of these programs.

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Thank you for helping ACPA Family Services build cleft and craniofacial awareness this July.  We look forward to hearing about your successes!