Cleft Palate Foundation

1-800-24-CLEFT

Cleft Palate Foundation
Leadership Award Recipients

All winners of this award are personally affected by cleft or craniofacial conditions, either as affected individuals themselves or through family members.

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2008 Claire Crawford
Founder of Claire’s Bears project. By April 2008, Miss. Crawford had raised $13,500 for bears, cleft education and advocacy. She is also a co-founder of her high school’s Operation Smile Student Association.
2007 Paula Goldenberg
Founder of VCFS listserv and Medical Director of the International 22q11.2 Deletion Syndrome Foundation.
2006 Cheryl Hendrickson
Founder of Beckwith-Wiedemann Syndrome Support Network and Beckwith-Wiedemann Children’s Foundation.
2005 Debbie Oliver
Founder and developer of cleftAdvocate and the Pathfinder Outreach Network.
2004 Carrie Gruman-Trinkner
Advocate and author of the book, Your Cleft Affected Child: The Complete Book of Information, Resources & Hope. Ms. Gruman Trinkner also serves as director of the Beacon of Hope Fund, which offers information on clefting to the public.
2003 Ginny Patzer
Member of the Maryland Society for Cleft Lip and Palate Children.
2002 Julie DeLaurier
Liaison with Cambodian orphanage who has so far facilitated the adoption of nine children with clefts to US families.
2001 Karen LeClair
Creator of the “Bears for the Kids” program, providing special teddy bears to individuals born with cleft lip and palate.
2000 Arthur and Shelley Green
Regional coordinators for Florida Cleft Palate-Craniofacial Association and coordinators of a craniofacial camp. Advocates for Florida legislation mandating insurance coverage for children with clefts.
1999 William Eiserman
Founder of Rocky Mountain AboutFace Chapter. Co-developer of AboutFace school program “Unwrapping the Package.”
1998 Hope Charkins
Founder of the Treacher Collins Foundation and author of “Children with Facial Difference: A Parent’s Guide.”
1997 Joanne Greene
Founder of Wide Smiles and mother of adopted children with cleft lip and palate.
1996 Rickie Anderson
Founding President of the Advisory Board for the University of Illinois at Chicago’s Craniofacial Center. (Now the Executive Director of AboutFace USA.)
1995 Betsy Wilson
US Founder and Director of Let’s Face It.
1994 Peg Bryner
Founder of Cleft Lip and Palate Support Group Inc. and Board Member of the National Cleft Palate Association.
1993 Pamela Onyx
President of the National Cleft Palate Association and Director of AboutFace USA.
1992 Karen Schudson
Coordinator of the Milwaukee Cleft Lip and Palate Helpline and Charter Member of the National Cleft Palate Association.
1991 Bernice Bergen
Founder and Executive Director of FACE of Sarasota, a nonprofit support organization for individuals affected by craniofacial disorders.
1990 Donnie Schlereth
President of the National Cleft Palate Association.
1989 Elisabeth Bednar
Executive Director of AboutFace International.
1988 Hyman Gardsbane
Founder of the National Cleft Palate Association, a parent-patient organization.

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Last Updated: Nov 9, 2009