“When I was a child living with a facial disfigurement, I
thought this was the end of the world. I was wrong.”
My name is Michelle. I’m from Connecticut. I was born with craniosynostosis, hypertelorism, and frontal nasal syndrome. After several successful surgeries, I want to bring awareness to families, children, and any individuals that are living with craniosynostosis, that there is help, you are not alone. When I was a child living with a facial disfigurement, I thought this was the end of the world. I was wrong. It’s not the end of the world. Each and every one of us is born with a special gift. I graduated high school. At 17 years old I had my first job working in a supermarket. In 1989 I was selected as an extra in a movie called “Stanley and Iris” – I had my 15 minutes of fame. If you blink, you will definitely miss me.
“I never let my birth defect stop me from pursuing
whatever I wanted to do in my life.”
I traveled, living in Edgware, Middlesex, London, England. Returning back home to the USA, I took a college course for the Certified Nursing Assistant Program. I then attended a university for property management, all of which I successfully completed. I have a beautiful daughter and a husband. I’ve definitely had a life-changing experience. I never let my birth defect stop me from pursuing whatever I wanted to do in my life. When people say “I know how you feel” or “I know what you are going through”, they don’t, but I do because I lived it. I am the face of craniosynostosis.
If you have any questions or would like to get in touch, please email me.
Last Updated: Aug 17, 2011