ACPA Family Services

Cleft-Craniofacial Community Stories

Michelle’s Story

Michelle’s story in PDF format

CPF’s August 2011 Story of the Month, Michelle.
“When I was a child living with a facial disfigurement, I
thought this was the end of the world. I was wrong.”

My name is Michelle. I’m from Connecticut. I was born with craniosynostosis, hypertelorism, and frontal nasal syndrome. After several successful surgeries, I want to bring awareness to families, children, and any individuals that are living with craniosynostosis, that there is help, you are not alone. When I was a child living with a facial disfigurement, I thought this was the end of the world. I was wrong. It’s not the end of the world. Each and every one of us is born with a special gift. I graduated high school. At 17 years old I had my first job working in a supermarket. In 1989 I was selected as an extra in a movie called “Stanley and Iris” – I had my 15 minutes of fame. If you blink, you will definitely miss me.

CPF’s August 2011 Story of the Month, Michelle.
“I never let my birth defect stop me from pursuing
whatever I wanted to do in my life.”

I traveled, living in Edgware, Middlesex, London, England. Returning back home to the USA, I took a college course for the Certified Nursing Assistant Program. I then attended a university for property management, all of which I successfully completed. I have a beautiful daughter and a husband. I’ve definitely had a life-changing experience. I never let my birth defect stop me from pursuing whatever I wanted to do in my life. When people say “I know how you feel” or “I know what you are going through”, they don’t, but I do because I lived it. I am the face of craniosynostosis.

If you have any questions or would like to get in touch, please email me.

Last Updated: Aug 17, 2011