ACPA Family Services

Cleft-Craniofacial Community Stories

“So much joy”

Baby Kynslee’s cleft was discovered at birth. Her mom shares their story.

“How We Found Out”

Tani’s experience learning of her unborn baby’s cleft

Cora’s Story

Cora’s mom reflects on her 9-year old daughter’s cleft journey.

Robyn’s Story

An adult with congenital genetic complex malformation syndrome shares her experiences and successes.

Finn’s Journey

Reflecting on experiences having a child with cleft palate.

“Perfection in an Imperfect World”

A family’s adoption story and words of advice from Emmy’s mom

Will’s Words

A 13-year old shares his thoughts on life with a cleft.

Henry Baddour: Cleft Proud

A high schooler making a difference in the cleft community.

Tamala’s Story

An adult born internationally with cleft lip.

Baby Andrew’s Story

A newborn who struggled with feeding and now thrives.

Carrissa’s Story

Twenty-two year old reflects on her journey with a unilateral cleft lip and palate.

Holding On– Jasilyn’s Story

12-year old born with bilateral cleft lip and palate shares her own story

Vivienne

Second child, born with cleft palate

Macy’s Story

First child, born with Pierre Robin syndrome

Update: Charlotte’s Lip Revision

Charlotte has lip revision surgery.

Hope

Second child, born with unilateral cleft lip and palate

Pau

Niño nacido con Pierre Robin

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Danielle’s Story

Second child, born with bilateral cleft lip and palate

Hudson’s Story

First child born with unilateral cleft lip and palate

Amairany

Teenager born with cleft lip

Dominic’s Update

An update on Dominic.

The Stewart Family

Two adopted girls born with cleft lip and palate

Lucas’s Story

Second child, born with unilateral cleft lip and an alveolar cleft

Eric’s Story

Teenager born with cleft lip and palate.

Lori Ann Locke

Adult born with cleft lip and palate

Mateo

Sindrome: Pierre Robin

Stefano’s Update

A photo update on Stefano, our May 2006 Story of the Month.

Ayla’s Story

Young adult born with a cleft lip.

Michelle’s Story

Adult with craniosynostosis, hypertelorism, frontonasal syndrome.

Yagiz’s Story

First child, born with a cleft lip.

Christopher Stadulis

Adult born with a cleft lip and palate.

Peyton Marie Hall

First child, born with a cleft of the soft palate.

Mia’s Story

Fourth child, born with cleft lip and palate.

Katye Trexler

Born with a cleft palate

Jessica Puma

Teenager born with cleft lip and palate.

Casen’s Story

Fourth child, born October 2009, with cleft lip.

Tamala Coleman

Adult born with a cleft lip and palate.

Update: Hunter Stitely Turns Two!

What Hunter’s been up to since his story was published in October 2008.

Roger Grabman

Adult born with cleft lip tells about his moustache transplant.

Nicole Giron

Teenager born with cleft lip and palate.

Carson All

First child, born January 2009, with cleft lip.

Brandon’s Blog

Brandon Burditt was born with bilateral cleft lip and palate.

Gina Butchin

Adult with cleft lip and palate shares her story.

Charlotte Gould Turns One!

Charlotte and her family share a great idea for birthday gifts!

The Cogswell Family’s Story

Problem solving for son with cleft lip and palate.

Ariana Lemkuil

First child, born June 2007, with unilateral cleft lip.

Jeana Sue Storey

Story of Jeana’s second palate reconstruction.

The Stitely Family

First child, born May 2008, with bilateral cleft lip and palate.

Charlotte Gould

Daughter, born March 2008, with unilateral cleft lip and palate.

Isaac Robert Madson

Son, born December 2007, with unilateral cleft lip.

Joliet Sanaa

Daughter, born May 2007, with bilateral cleft lip and palate.

Deklan’s Story

First child, born August 2006, with unilateral cleft lip and palate.

The Jeffers Family

First child, born December 2006, with cleft palate.

La Historia de Bruno

Gemelo nació con labio hendido y paladar hendido.

Santiago Moreno

Fraternal twin, born May 2005, with bilateral cleft lip and cleft palate.

Brennan Helmer

First child, born January 2007, with unilateral cleft lip and palate.

Made it Through the First Year!

An update on Ella Yvonne Ramos, fourth child with cleft lip and palate.

The Sabo Family

Five children, four with either isolated cleft palate or cleft lip and palate.

Keagan’s Story

Second child, born with cleft palate.

The Pertgen Family

First child, born September 2005, with previously undetected cleft palate.

Haley’s Story

Young adult, born with cleft palate.

Dominic’s Story

First child, adopted newborn, with bilateral cleft lip and palate.

Manaia Benjamin Ala

Second child, born November 2005, with cleft lip and palate.

Stefano’s Story

First child, born January 2005, with cleft lip to 42 year old mom.

Ella Yvonne Ramos

Fourth child, born August 2005, with cleft lip and palate.

Claire Crawford

Teenager, born with cleft lip and palate spokesperson, fundraiser and advocate.

Ethan Katsumi Jessop

Son born October 2002, with bilateral cleft lip and palate.

It’s a Boy

Third child, born with cleft lip not previously detected.

Quinn Sliment

Second child with previously undetected bilateral cleft lip and palate.

Avery Anna Walther

Fourth child with previously undetected unilateral cleft lip and palate.

Starr Van Keuren

Adult, born with cleft lip and palate (both repaired).

Madgeline Paige Statzer

Second child, born August 2004, with unilateral cleft lip.

Lissa Holmes

Adult, born with cleft lip, social worker and former Cleftline Manager.

Zoe Lynn

First child, born June 2004, with bilateral cleft lip.

Rose Senerchia

Adult, born with cleft lip and palate.

Jasilyn Sitzmann

First child with previously undetected cleft lip and palate.

Graci Brown

First child, born with unilateral cleft lip and palate and hemifacial microsomnia.

Cody Luckey’s Story

First child (one of twins), born January 2004, with bilateral cleft lip and palate.

Alisher’s International Adoption

Adopted 17 month old, born 2002, with bilateral cleft lip and palate.

Emma Radenslaben

Third child, born May 2003, with cleft lip and palate.

Frances Evans

First child, born March 2001, with previously undetected cleft palate.

A Story from Overseas

First child, born with previously undetected unilateral cleft lip and palate.

Kendal Tullis’ Story

Teenager, born 1990, with cleft lip and palate.

Jennifer Balistreri’s Story

First child, born January 2003, with unilateral cleft lip.

George and Kristine Dale’s Story: Goldenhar Syndrome

First child, born September 1999, with Goldenhar Syndrome.

Angelo Stallone

First child with previously undetected bilateral cleft lip and palate.

Jacqueline Denise Militano

Teenager, theater major, born with cleft palate.

The McDade Family

First child, born with previously undetected cleft lip.

The Sivertsen Family

Son born March 2000, with previously undetected cleft lip.

Marie Solleder

Adult, born September 1960, with cleft lip and palate.

Joey, Benjamin, and Mathias’ Story

Three brothers, born with clefts.

The Aberl Family

Son previously undetected cleft lip and palate.

The Kauffman Family

First child, born January 2002, with bilateral cleft lip and palate.

Josh Melton’s Story

Third child, born with previously undetected cleft lip and palate.

Mark Anthony Auclair

Adult, born 1982, with cleft lip and palate.

The Keith Family

Second child, born January 1993, with previously undetected cleft lip.

The Campbell Family

First child, born September 2001, with bilateral cleft lip and palate.

Peach’s Story on Tessier Clefts

Second child, born with Tessier cleft.

Craig Nabat’s Story

Adult, born with cleft lip and palate, entrepreneur.

Nicolás

Niño primero, nacido con labio hendido

T. Marie Nicaise

Young adult, born with unilateral cleft lip.

Nicolás from Chile

First child, born with previously undetected cleft lip.

Stacy Keach

Adult, born with cleft lip and palate, award-winning actor.

The Fryman Family

Second child, born with previously undetected cleft lip.

Teen Stories

Three teenagers tell their stories of growing up with cleft lip and palate.

The Hopkins Family

Second child, born May 2001, with bilateral cleft lip and palate.

The Sprunt Family

Third child, born with bilateral cleft lip and palate.

The Dodds Family

Third child with previously undetected cleft palate.

The Harbaughs’ Story

Second child, born with previously undetected cleft palate.

Gina Butchin’s Blog

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