Selected Bibliography for Parents of Children with Cleft Lip/Palate
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This list was compiled by the Parent/Patient Liaison Committee of the Cleft Palate Foundation. The Committee stresses that no single pamphlet is appropriate in its entirety for any given child. Please consult with your health care providers for a better understanding of the written material as it applies to your child’s specific needs.
Publications from the American Cleft Palate-Craniofacial Association
Cleft Palate-Craniofacial Journal. Published six times per year. Contact your local medical library.
Parameters for Evaluation and Treatment of Patients with Cleft Lip/Palate or other Craniofacial Conditions, 1993. 32 pp. $1.50.
The Cleft and Craniofacial Team, 1993. 6 pp. $1.50.
Information Published by Other Sources
Please order these items directly from their publishers. Listing in this bibliography does not imply endorsement or support of the item or organization by the Cleft Palate Foundation, and CPF is not liable for the consequences of medical advice provided by them. This list is not all inclusive; other resources and organizations are also available to assist you.
AboutFace, AboutFace Newsletter. AboutFace International, 123 Edward St., Suite 1003, Toronto, Ontario, M5G 1E2, Canada. Phone: (800)665-FACE. Membership $20/year. Other publications available.
Berkowitz, S., The Cleft Palate Story, 1994. Quintessence Publishing, Available in the “online library” at www.smiletrain.org.
Charkins, H., Children with Facial Difference: A Parent’s Guide, 1996. Woodbine House, 6510 Bells Mill Rd., Bethesda, MD 20817. Phone: (800)843-7323 or (301)897-3570. 361pp. $16.95.
Craniofacial Center, University of Illinois at Chicago, Feeding Your Special Baby, 1982. (English and Spanish versions.) University of Illinois Craniofacial Center, MC 588, 811 S. Paulina, Chicago, IL 60612-4353. Phone: (312)996-7546. $1.75, or 6 copies for $10. Videos also available on this topic and others.
Let’s Face It, Resources for People with Facial Difference. Annual Directory. Send self-addressed 9×12 envelope with $3.20 stamp to: Let’s Face It, PO Box 29972, Bellingham, WA 98228-1972.
Lipman, K., Don’t Despair Cleft Repair, 1999 edition. Parent memoir. Karen Lipman, 2179 Morning Sun Ln., Naples, FL 34119. Phone: (941)517-1752. Email: lipbook@aol.com. 76pp w/ pictures. $25 + $3 S&H.
MacDonald, S., Caring for your Newborn and Hearing and Behavior in Children with Cleft Lip and Palate. Prescription Parents, 22 Ingersoll Rd., Wellesley, MA 02181. Phone: (781)431-1398. $1.95 each.
Mead Johnson, Looking Forward: A Guide for Parents of the Child with Cleft Lip and Palate Mead Johnson, 2404 Pennsylvania St., Evansville, IN 47721. 37pp. Free through doctor’s offices.
Miller, N., Nobody’s Perfect: Living and Growing with Children who have Special Needs, 1997. Brookes Publishing, PO Box 10624, Baltimore, MD 21285. Phone: (800)638-3775. 307pp. $21.
Moller, K., C. Starr, and S. Johnson, A Parent’s Guide to Cleft Lip and Palate, 1990. University of Minnesota Publication. Contact: University of Chicago Press, 11030 S. Langley Ave., Chicago, IL 60628. Phone: (800)621-2736 or (773)568-1550. ISBN 0816614911. 131pp. $16.95 + $3.50 UPS S&H.
Peckinpah, S.L., Rosey. The Imperfect Angel, 1991. Scholars Press. Hardcover children’s book. Dasan Productions. Phone: (800)348-4401. Available through major bookstores. 32pp. $15.95.
St. John’s Hospital Cleft Palate Center, If Your Baby has a Cleft, 1990. 30 min. video. Contact: Barbara Wasilewski, St. John’s Hospital Child Study Center, Attn: Cleft Palate Center, 1339 20th St., Santa Monica, CA 90404. Phone: (310)829-8150. $25 to rent, $58 to buy (includes tax).
Wicka, D. and M. Falk, Advice to Parents of a Cleft Palate Child, 1982. Charles Thomas Publisher, 2600 S. 1st St., PO Box 19265, Springfield, IL 62794-9265. Phone: (217)789-8980. 80pp. $23.95 + $5.50 S&H.
Wide Smiles, Wide Smiles Magazine. Joann Greene, Wide Smiles, PO Box 5153, Stockton, CA 95205-0153. Phone: (209)942-2812. Web: www.widesmiles.org. $20/year.
Wynn, S., Team Approach to Children with Cleft Lip and Palate. Item 75001. 32pp. $5. How to Feed Babies with a Cleft. 14 min. video. $19 for families, $89 for institutions. Rentals also available. Contact: Maxishare, PO Box 2041, Milwaukee, WI 53201. Phone: (800)444-7747.
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