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Support Organization Links Focusing on Cleft Lip, Cleft Palate, and Other Craniofacial Conditions: Letters R-W

R – S – T – V – W

Links:R

Organization engaged in building parent speech training programs that complete the job that surgery begins. Earthspeak trains parents and other lay people to become the speech teachers their children need.

Links:S

Nonprofit organization dedicated to improving healthcare for children with cleft lip and palate in developing countries.

Online support group for individuals and families affected by Stickler Syndrome.

Links:T

Non-profit organization dedicated to improving the availability and quality of medical treatment and care of children and adults, with cleft lip and palate and related craniofacial disorders world-wide.

An organization of families, individuals and medical professionals who are interested in developing and sharing knowledge and experience about Treacher Collins Syndrome and related conditions.

Links:V

A non-profit organization that provides support and information to individuals and families who are affected by Velo-Cardio-Facial syndrome.

Links:W

The GRC has been developed by the Human Genetics Programme (HGN) to provide information and to raise awareness on human genomics, a new and rapidly developing science. This site provides an understanding of the issues and concerns around genomics and public health and, in particular, addresses the ethical, legal and social implications (ELSI) of genomics. Its goal is to encourage the optimal utilization of genomics to contribute to WHO’s goal of achieving the best attainable health for all people.

Website providing support, inspiration, information, and networking for families everywhere who are dealing with the challenges associated with cleft lip and palate.