Cleft Palate Foundation :: External Links : General Cleft and Craniofacial Links
Cleft and Craniofacial Conditions: General Information and Support Organization Links
International organization providing emotional support and information to people with facial differences and their families.
A national nonprofit organization, headquartered in Dallas, TX which addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions. CCA’s mission is to empower and give hope to facially disfigured children and their families.
Parental support group.
Website and magazine about parenting a child or young adult with a disability or special health care need.
National coalition of families and professionals advocating for children with special needs. See their network of state coordinators and publications on insurance advocacy.
A New England-based, not for profit, volunteer based organization that provides clear, accurate information, as well as other educational resources to children born with craniofacial conditions and their families.
A network and clearinghouse of resources for individuals with facial differences, their parents, families, and friends.
Nonprofit network for people with facial difference and their families, friends, and professionals. See their comprehensive index of organizations and resources.
Organization dedicated to “improving the health of babies by preventing birth defects and infant mortality” through research, community services, education, and advocacy. It also provides individual genetic counseling to callers.
Federation of organizations serving people with rare disorders and disabilities. Reports on hundreds of conditions are available.
National information and referral center providing information on disabilities and disability-related issues for families, educators, and other professionals.
Free school curriculum designed to establish a classroom climate that reduces bullying, teasing, and violence. Founded by Peter Yarrow of Peter, Paul, and Mary. Curriculum options are Grades 2-5, Grades 6-8, and camps/after-school programs.
Nonprofit organization dedicated to improving healthcare for children with cleft lip and palate in developing countries.
Non-profit organization dedicated to improving the availability and quality of medical treatment and care of children and adults, with cleft lip and palate and related craniofacial disorders world-wide.
Website providing support, inspiration, information, and networking for families everywhere who are dealing with the challenges associated with cleft lip and palate.