General Information and Support Organization Links
International organization providing support and education to individuals and families affected by facial differences and improving public awareness.
Serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs), so that they can focus their efforts on serving families of children with disabilities.
Organization based in Dallas, TX addressing medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions. CCA’s mission is to empower and give hope to individuals and families affected by facial differences.
Provides parents of kids with cleft lip/palate a one-stop overview of many options related to cleft care, based on the personal experience of hundreds of other families of cleft-affected children.
Organization whose mission is to educate and bring awareness to those affected be cleft lip and/or palate and other craniofacial anomalies by providing support, education, advocacy, and research.
Cleft lip/palate resource binder compiled by Eastern Health in St. John’s, Newfoundland, Canada. This resource is also available in French.
Website and magazine about parenting a child or young adult with a disability or special health care need.
National coalition of families and professionals advocating for children with special needs. See their network of state coordinators and publications on insurance advocacy.
Provides information about team care in Florida, as well as referrals for parent support resources.
A New England-based, not for profit, volunteer based organization that provides clear, accurate information, as well as other educational resources to children born with craniofacial conditions and their families.
A network and clearinghouse of resources for individuals with facial differences, their parents, families, and friends.
Organization dedicated to helping moms have full-term pregnancies and research the problems that threaten the health of babies.
Federation of organizations serving people with rare disorders and disabilities. Reports on hundreds of conditions are available. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
Organization working to assure each child and youth a respectful, safe and compassionate climate of learning. Founded by Peter Yarrow of the folk group Peter, Paul & Mary, the organization disseminates educational resources designed to establish a classroom climate that reduces bullying, teasing, and violence. “Don’t Laugh At Me” curriculum options are Grades 2-5, Grades 6-8, and camps/after-school programs.
Organization dedicated to improving healthcare for children with cleft lip and palate in developing countries by providing cleft repair and training local doctors to perform these repairs in their own communities.
Organization dedicated to empowering local multidisciplinary medical teams to provide free comprehensive cleft lip and palate care for children and adults in developing countries.