Conference Schedule

Lunch

WELCOME

EVALUATIVE MEASURES OF TEAM COORDINATOR ROLE AND PATIENT SATISFACTION WITH TEAM APPOINTMENTS

This session will educate the attendees about the process of evaluation measures of the cleft/craniofacial team process and the role of the team coordinator. The goal of these evaluation measures is quality improvement.

Dana M. Walsh, BS

THE ROLE OF THE PEDIATRIC DENTIST IN THE CLEFT PALATE TEAM: A REVIEW

The goal of this presentation is to provide pertinent information about the scope of services pediatric dentists can provide. The speakers will give examples of specific treatment procedures, outline what other members can expect from this colleague and present a rationale why it would be beneficial to have a pediatric dentist on their team.

Ulrich Klein, DMD, DDS, MS, Meredith Harris, MD, DDS

Discussion

NURSE PRACTITIONER BASED PLAGIOCEPHALY CLINIC

The purpose of this presentation is to share the experience of a nurse practitioner based plagiocephaly clinic and the advances the clinic has made over the past four years. The objective of the presentation is to describe how the plagiocephaly clinic is run, list the benefits of the clinic, and list the advantages of the new technology used.

Sybill D. Naidoo, RN, MSN, CPNP, Alex A. Kane, MD

UTILIZING A CARE MANAGEMENT MODEL TO OPTIMIZE CLEFT CARE

This presentation provides information to nurses and coordinators about a clinic’s experience with the Care Management Model. This cleft palate team uses a Care Management model to assist the medical staff in tracking and follow-up of patients affected with clefts and craniofacial anomalies. A Care Management model is a healthcare delivery process that helps achieve better health outcomes by anticipating and linking clients with the services they need more quickly.

Eduardo Lara, MHA, LBSW

Discussion

Break

THE NEVER ENDING JOURNEY: DEVELOPMENT OF A PARENT NOTEBOOK

The purpose of this presentation is to share an Institute’s experience with the development, institutional approval, and distribution of a cleft lip/palate notebook for families. Results from a family feedback survey will also be discussed.

Sibyl V. Scheve, RN, BSN, Joan Barzilai, RN, MSN

IMPROVED METHOD TO CONVEY INFORMATION TO PARENTS OF CHILDREN WITH CLEFT LIP AND PALATE UNDERGOING OPERATION

This presentation will share a hospital’s experience with the use of a video to convey information for parents of children with cleft lip and palate and to prepare the parents for their child’s hospitalization. The results of a post video questionnaire will be discussed to determine the effectiveness of the video.

Darawan Augsornwan, MPH

EMPOWERING AND INTEGRATING FAMILIES

This presentation will describe and critique the potential theories that can be applied to families affected by cleft and craniofacial conditions and will give concrete steps that can be implemented by teams to increase family involvement in the treatment of cleft and craniofacial conditions. The many implications that these disabilities and illnesses can have on families will be discussed. This presentation will include formal lecture, sharing of highlights from family interviews, and the presentation of many challenging cases.

Anna Thurmes, MA, Wendy Looman, PhD, Karlind Moller, PhD, Kelly Nett Cordero, MA

Discussion

BREASTFEEDING A BABY WITH A CLEFT: DILEMMAS AND PROBLEM SOLVING TO CREATE AN OPTIMAL FEEDING PLAN

This presentation will include an overview of the mechanics involved in breastfeeding and factors to consider for successful infant feeding. The unique issues and challenges that breastfeeding an infant with a cleft lip/palate present will be discussed. The main objective of the lecture is for participants to better understand these specific issues facing the infant with a cleft lip and/or palate and to demonstrate an awareness of strategies and interventions to support an optimal feeding plan.

Debra Paul, BS, OTR, Nancy Creskoff Maune, BS, OTR

EARLY FEEDING OF INFANTS WITH CLEFT PALATE: WHO, HOW AND WHEN – PANEL

The purpose of this panel presentation is to address the many problems associated with feeding the infant with a cleft palate including poor weight gain, feeding methods, and parental issues. The objective of the panel presentation will be for participants to learn the value of early team management and feeding support during the prenatal and neonatal periods until the first team visit. Each participant will also gain insights and solutions into the controversies regarding breast feeding the infant with cleft palate.

Katy Hufnagle, MS, Susan Sellers, Alison Repass, RN, MSN, CPNP, Margie Wells-Friedman, MS

Discussion

Adjourn