ACPA Family Services

A Good Question: More surgery when I get older?

A Good Question: More surgery when I get older?

“More surgery when I get older?” We recently received this great question from a twenty-something with repaired cleft lip and palate.

Information for Adults

Information for Adults

Repaired clefts of the palates often age very well and remain intact and healthy for many decades. However, as the body changes with age, additional cleft care and revision may be needed to support the health and function of the repair. In addition to care of the palate, adults with repaired clefts may also need care for loose teeth that don’t have the bone support needed to remain healthy throughout the lifespan.

Here at CPF we hear from many adults who are searching for cleft specialists who care for adults patients. We help connect them with an appropriate cleft palate treatment team or specialist in their area.  For more information about adult cleft care, take a look at our booklet Information for Adults.

2 Responses

  1. Jill Jenkins
    I'm a 55-year-old female who has cleft palate. My surgery to correct was at The University of San Francisco Hospital when I as 12 years old. Since then, I've not needed any more surgery. I seem to have the same speech issues that I've always had. Otherwise, as I go into my senior years, I'm happy and healthy!
    Reply
  2. Lance
    I'm a 48 year old male who has cleft palate. My last surgery was when I was around 21. I had some issues with my dental work and teeth over the years. Currently I'm waiting to have another surgery to replace the deteriorated bone graph from my 20's. Additionally, I'm having my jaw broke and set back in order to correct a cross bite I've developed. My bridge for 4 of my front teeth was recently taken out (or should it say was about to fall out) and I had to have the 2 anchor teeth pulled because they had periodontal disease. It's been a rough road lately and I hope the end result is one that will correct issues until I'm gone. I do have to say, I've had many great times and fantastic relationships but I've always felt different than those who do not have cleft palate. Like a secret that was written across my face... I've recently got married (first time) and now that I'm literally re-opening everything. I've become very apprehensive about having children, which we both want. I'm not sure. It's as though I need 100% assuredness my child will not have to endure stuff I have. We all want better for our kids and I am no different. I'm not even sure what to say next. It hasn't been fun and knowing I have to do it all over again in hopes this will be the last time. This is a daunting thought. So I leave you with this, cleft palate is like any other issue you deal with it. You hope it works out and move on. If it comes back on you, you do it again and move on. Keep moving on until you get the result you want or need. It's a fight to look, act, sound and be "normal."
    Reply

Leave a Reply to Lance or cancel reply