At only 12 pages, it’s a little booklet with some big goals. We hope it will help families:
• better understand what a prenatal diagnosis is;
• make informed decisions during pregnancy;
• prepare for the birth of a baby with a cleft lip or cleft palate;
• understand why working with a cleft palate treatment team is important.
My first days at CPF were filled with phone calls and emails from new parents, often only a few hours or a few days after the births of their sons or daughters. That was 2006, when learning about feeding an infant with a cleft, cleft treatment teams, and cleft care and repair still only happened after baby’s birth, not before. And that’s how CPF has pursued its mission since 1973: meeting and supporting families only after the birth of a child with a cleft.
These days, advances in technology, particularly in the area of ultrasound imaging, increasingly help families and health professionals identify and prepare for baby’s birth differences, including clefts. Many of today’s phone calls and emails will come from parents expecting a baby with a cleft, sometimes as early as week 20 of pregnancy!
The prenatal diagnosis of clefts is a tremendous opportunity for families to learn about feeding, treatment teams, and cleft care and repair–before baby’s arrival. Our hope is that when the due date finally rolls around, families will feel confident, optimistic and excited about welcoming their newest member.
Whether it’s a prenatal diagnosis, a delivery-room surprise, or any other cleft care question that may pop up for toddlers, teens, or adults, we’re always just a phone call (1.800.242.5338) or email away.